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Author Topic: How to get the message across better.... (by Terry)  (Read 1570 times)

laryadmin

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How to get the message across better.... (by Terry)
« on: June 13, 2009, 02:44:26 AM »

(Original post by Terry, Thu Apr 23, 2009 7:44 pm)

I posted this somewhere else as part of a longer message but thought I'd post here to see if we can get some responses on this specific issue:

I wonder if any of you can think of ways to convey the message regarding the challenges of avoice problem? Eg. stories or ways to describe. I have recently started speaking at conferences raising awareness of the issue and also writing items for inclusion in the press, etc... I often feel I don't get the issue across sufficiently... It is also really difficult to get those without the problem to engage with the issue and take it sufficiently seriously. Input from others with voice problems would be really helpful to do this better.

Please let me know your ideas... wacky ones welcome too...
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laryadmin

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Re: How to get the message across better.... (by Terry)
« Reply #1 on: June 13, 2009, 02:45:04 AM »

(Original post by laja, Mon Apr 27, 2009 10:01 pm)

Good idea, will give it some thought,
Lynn
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laryadmin

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Re: How to get the message across better.... (by Terry)
« Reply #2 on: June 13, 2009, 02:45:38 AM »

(Original post by Terry, Thu Apr 30, 2009 12:30 am)

great... will look forward to your ideas... I need new perspectives... fear I am going stale!

T
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laryadmin

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Re: How to get the message across better.... (by Terry)
« Reply #3 on: June 13, 2009, 02:46:39 AM »

(Original post by Janet, Tue May 05, 2009 5:00 pm)

Terry,

Just one little point that I have thought of, could we add more links to search engines for this site, it took me a little searching to find this forum, and I had previously used search strings such as speechless, speech problems, speech forum etc, after a week of looking for a forum for people like me, I finally realised "vocally impared' might be a good term and description for what I am. This found me the British Voice Association, through which I found The Lary Project but it took a bit of determination. It may help attract more contributors if it was higher up in the search results.

Janet
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laryadmin

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Re: How to get the message across better.... (by Terry)
« Reply #4 on: June 13, 2009, 02:47:16 AM »

(Original post by Terry, Wed May 06, 2009 12:51 am)

Hi Janet
Thanks - good to note. I had never actually googled "voice impaired" before!

We are currently no.7 on google for "voice problems" (although annoyingly it takes you to one of the information articles, not the homepage). I thought that was quite a good place to have gotten to considering the site is still relatively recent.

The webdesigner is currently away in Mexico of all places (no flu symptoms thankfully!). Anyway, he is going to work on search engine optimisation when he gets back in a week.

Hope all is going well with your recovery?

All the best, Terry
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quietvoice

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Re: How to get the message across better.... (by Terry)
« Reply #5 on: October 20, 2009, 10:59:40 AM »

H Terry - the other route would be to raise awareness among speech and language therapists and GP's about what it's like to live with a voice problem so they can both understand us more and piont people in our direction. One way is through expereintial learning - e.g. a training course where they simulate what it's like trying to function in everyday life with a voice problem - and (with funding) get some very eye catching/large posters to put up in voice clinics/waiting rooms so that more people are aware of the forum.
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terry

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Re: How to get the message across better.... (by Terry)
« Reply #6 on: October 20, 2009, 06:26:35 PM »

Great minds think alike!

Re the posters point:  we are doing 2 new poster/leaflets for distribution in voice clinic waiting rooms (we've done some before but I think it's time for something more impactful - if that's a word).  One will promote the support groups, the other to make people aware of the website and particularly the forum.  Can you think of a way we could really attract people?  The first drafts of the posters are quite simple and not wordy but I feel they need a bit of something to really grab people's attention.

The experiential learning thing is a great.  One issue I imagine would be how to convey/replicate the different symptoms people with voice problems experience.  I can imagine some symptoms might be more straightforward eg. getting people to experience what it's like not be easily heard.   On the other hand, I wonder how one would convey the pain or breathing based problems related to voice impairment? A wasp down the throat may be a bit drastic perhaps!    Any ideas of how to do this would be great.
 
Next time I speak to our patron speech therapist I will discuss whether this kind of thing has been done before within the professional voice community and if so, what it involved and could it be replicated in some way with others (including those beyond the voice community).

Thanks for keeping with the Forum.  These things take time to build and it definitely requires some troopers like you at the beginning to build the foundation.
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Janet

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Re: How to get the message across better.... (by Terry)
« Reply #7 on: February 28, 2010, 04:52:34 PM »

Terry,

I thought about this on the way home. I used to use the analogy of the shouting to try to get people to understand the effort it took for me to talk before my 'good' chord started to compensate. The shouting analogy helps describe the discomfort/pain I feel after a heavy talking day as well. I ask people to imagine how thier throats would feel if they had been yelling their heads off all day. Not too sure if this could be used in any practical sense, might need some heavy sound-proofing and ear muffs, but it would really bring home the effort and discomfort I (and I guess other chord palsy) have experienced.

Janet
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Re: How to get the message across better.... (by Terry)
« Reply #8 on: March 03, 2010, 11:35:22 AM »

Terry,

Do we have any posters or leaflets advertising the Lary Project site? I would like to approach my ENT consultant and GP about having a poster displayed in their waiting rooms.  It would be great to be able to download one from this site and print it off for them. Is that possible?

Janet
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Re: How to get the message across better.... (by Terry)
« Reply #9 on: May 05, 2010, 04:15:06 PM »

I was listening to Julie Andrews being interviewed this morning about her voice and how she dealt with losing her singing voice after surgery, just made me wonder that it would be great to get someone high profile like her to become a patron of the site.

Only a thought

Janet

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terry

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Re: How to get the message across better.... (by Terry)
« Reply #10 on: May 05, 2010, 09:27:34 PM »

Hi Janet

I missed these messages from you.
a. re the posters, yes I do have some and give you them at the next support group meeting so you can pass on to your local ENT dept.  THANKS!
b. re Julie Andrews.  I have looked into her.  We are currently in the process of getting registered as a charity.  Once registered, she will be at the top of the patron list! 

Hope you are still coming on Saturday 15 May?
Terry
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Janet

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Re: How to get the message across better.... (by Terry)
« Reply #11 on: May 10, 2010, 12:39:08 PM »

I will be there on Saturday. see you there  :)
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Twinkle2

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Re: How to get the message across better.... (by Terry)
« Reply #12 on: June 06, 2010, 04:11:33 AM »

How do I get a poster?  I would be happy to ask my speech therapist to display one - there is no support/advice whatsoever in her waiting room or clinic. 
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terry

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Re: How to get the message across better.... (by Terry)
« Reply #13 on: June 06, 2010, 01:09:55 PM »

Hi Twinkle!  I would be happy to send you some - thanks for the offer.  Could you send me your address details to info@lary.org.uk

Terry
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Hazel

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Re: How to get the message across better.... (by Terry)
« Reply #14 on: July 14, 2010, 08:20:38 PM »

Ideas

As I’m new, I’m trying to work my way through all the old posts, so apologies if this isn’t really relevant anymore.

I think we could look at this from 2 perspectives, a] awareness raising, informing everyone else about the realities of living with a voice problem b] supporting those with a voice problem. Some of these ideas may do both. Apologies though, some of my ideas can be strange…

Video clips – very short clips with voice overs at the end.
Video1 clip of Norman Collier doing the faulty microphone sketch and then voice over saying something like ‘very funny as a comedy sketch, but not so funny when voice problems affect your everyday life. For more information and support, contact Lary at http://voiceproblemsupport.ning.com/
Video 2 – black screen, famous voice speaking, black screen fades up to show picture of the famous person, this happens 3 times with 3 different voices and faces then voice over says ‘Many of us are instantly recognisable just from our voices, but what happens when your voice doesn’t sound like you any more? For more information and support, contact Lary at http://voiceproblemsupport.ning.com/
Video 3 – the clip from Singing in the Rain where they start making ‘Talkies’ and the woman’s voice doesn’t match her image, then the voice over with something like ‘are your voice problems impacting on your work and career? For more information and support, contact Lary at http://voiceproblemsupport.ning.com/

A Lary Logo which can be put on a variety of different things, including perhaps a badge, posters etc etc

A Lary Card – credit card style card, logo and web address on one side and the other side says something like ‘I have a medical condition which affects my vocal cords, please listen carefully as I may be difficult to hear’ [or for those with a more irreverent sense of humour and a fondness for ‘Allo Allo’ ‘Listen very carefully, I shall say this only once’]

A Sponsored Silence, Silent Sit In or a Silent March [I’ve been on one of these many years ago and it was unbelievably powerful.

You mentioned there was work being done to become a charity, as charity we may be able to do other things, for example…
Contact www.naturalreaders.com and ask them to supply their text to speech software to our members either free or at a reduced rate [thank you Janet for that info about T2S software]

Also yes, have a patron, but I’m wondering [thinking sideways] whether someone with a strong voice that they use to make their living with might be a good choice if Julie says no. I'm thinking sort of Shakespearean actor type Patrick Stewart, Ian McKellen etc. In my mind’s eye I can see someone like that talking on BBC Breakfast very powerfully about how devastating voice problems might be to them, really making people think, as sadly, I think sometimes when you have someone advocating for situations that are personal to themselves it’s not always so strong a message. Sorry I’m not explaining that well.

Big store or supermarket support

Wordsmithers Support, get scriptwriters, poets, playwrights involved, i.e people who write words to put into other people’s mouths

Participation exhibitions – ‘Having the Last Word’ exhibit. Approach an Arts Centre, community centre etc etc and ask them to support this. People passing through the centre are invited to write on a postcard [or a speech bubble shaped piece of card]. They are asked to think about [and write down] what their last words might be if they were about to lose their voice completely and who they would say those last words to and then hand the card in. The cards are then displayed at a later date and everyone can read what other people wrote. Very thought provoking and good for press articles too and Lary info can be available at the centre

And finally, probably not appropriate, so apologies again, but in the spirit of reclaiming words often used to define  and describe us and to defiantly show that we may have lost our original voices but not our sense of humour … a badge for all group members with these words on it … Hoarse Whisperer.






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